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Inside the Lab Profession, Training and education, Precision medicine

The Patient Expert

My story

As a patient with a rare and incurable disease and a cornucopia of comorbidities, I quickly understood the advantages of learning more about my health issues. I am part of a culture where “discussion and dialog” are considered essential to everyday life, so I knew right from the start that my health care providers would play a huge role in my quest to acquire more knowledge – and that includes the pathologists and laboratory medicine professionals who diagnosed me, and who continue to monitor my health and make sure that my medications are doing their job. I know that I need to educate myself so that I can be an equal partner in discussions about my future treatments and health management. If I want shared decision-making, I had better up my game!

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About the Author

Marleen Kaatee

Marleen Kaatee is the founding President of PSC Patients Europe and a fellow of the EUPATI Patient Expert Training Course.

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